Monday, April 27, 2015

Today and Tomorrow

Creating a mask for
radiation therapy
Today has been a busy day...

In-room visits with nurses, doctors, physical therapists, ophthalmologists, anesthesiologists.

A visit from Mrs. Hayward that she slept through.

Going over Adenoviral Vector Trial details.

Going over Radiation Therapy details.

Going on an adventure to Brigham and Women's Hospital to create a mask and map out where the radiation will be given.

Impressing everyone with the amount of food KK could eat and starting to feed herself.

Tomorrow...

Surgery is scheduled for tomorrow.  I've heard first thing, mid-morning, and 1:00pm.  "First thing" is definitely not happening any more.  I suspect that we will head down mid-morning and surgery will begin at 1:00. Gotta love "hospital time".

The goals for the surgery are to (1) remove more of Charlie, (2) inject the Adenovirus, and (3) form a pathway for the fluid in the cavity to begin draining thus negating the need for either an internal or external shunt (Praise God!).

6 comments:

Melissa Singley said...

Thank you for posting these updates. There are so many people thinking and praying for you both. I pray that tomorrow goes smoothly and is successful in every way the doctors are aiming for.

Amy Marr said...

Thank you so much for sharing your journey with us here. I check several times a day to see how KK is doing and we are praying for her. I'm not sure how to tell my daughters about it yet. Do you have an address for KK at CHB that we could send her a card?

Beth Lundergan said...

Father, embrace your daughters in your love today!
Steady the Doctors hands and open their eyes, today's!
Amen

Terri said...

Continuing to pray! Thinking of you both constantly!

Susan said...

We love you and are praying for you both today. The blog is great to keep us up to date.

Judy Bleau said...

KK, you are brave and strong. Keep up the good work!