Thank you to all who continue to pass on info like the Duke University polio virus trial. Unfortunately, many of the trials and names of doctors are for adults only. The other thing that needs to be considered is the kind of tumor it is (KK's is a Glioblastoma Multiforme grade IV).
I know that Dana Farber/Children’s Hospital is on top of all the state-of-the-art neuro-oncology care and they are geared specifically for kids and teens. Here is the link to the doctor that our friend has connected us with:
http://www.dana-farber.org/Health-Library/Mark-Kieran,-MD,-PhD.aspx
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